interview from a bar stool with simon ibell
We met Simon Ibell at the Once Upon a Cure gala in September, and immediately we were enchanted. Inspiring would be an understatement when describing Simon. The founder of the iBellieve Foundation, an organization dedicated to finding a cure for MPS II (Hunter Syndrome) and over 50 related Lysosomal Storage Disorders, Simon has also launched Be Fair 2 Rare campaign – a global movement bringing awareness and advocacy to the rare disease community.